“Some people want it to happen, some wish it would happen, others make it happen” – Michael Jordan
I’ve been relatively quiet, of late. After the slog of Marathon and 10k swim training, my mind needed a rest as much as my body. I let myself have some time to reflect and just do whatever the hell I wanted to do. I still went to the gym, got in the pool and hopped on my bike, but it was when I wanted to and literally just for fun and smiles. What a tonic that’s been. I now feel ready. Ready to tackle the 6.5 months of tough training that lies ahead of me. Ready to sacrifice and commit. Ready to put my money where my mouth is and make my iron-dreams happen.
All being well, on June 17th 2018, I will stand on the shore of Derwentwater with 140.6 miles of swimming, cycling and death-marching in front of me. I will need all the support and encouragement I can get, but I wanted to give myself added incentive to keep me going during the darkest hours of training and the longest hours of Lakesman.
As “Athletes” (I still struggle to call myself that…) we are lucky to be able to do what we do. None of this is ever pain or struggle free, but imagine living life with a condition that meant you physically couldn’t do the things you loved? Millions of people live with Chronic conditions. Some are well known, others are less heard of. And I want to raise awareness of two conditions in particular: Lymphoedema and Lipodema.
In 2016, I raised over £1000 for Lymfund and I decided to support them again for 2018. But what do they do? Who are they? And what exactly is Lympho-whatever or Lipo-something?
I decided to ask WonderWoman herself for some more information……….
Who are you and how do you know Bean?
“I am Lynora Kennedy, The Mother of Bean.”
Aside from being a mummy, what is your day job?
“I am a Lymphoedema Therapist, Manual Lymph Drainage Practitioner and Massage Therapist. I also do Reflexology. I have been a therapist for 40 years.”
What is Lymphoedema (and how on EARTH do you spell it)?
“Lymphoedema is a long-term (chronic) condition that causes swelling in the body’s tissues. It can affect any part of the body. It develops when the lymphatic system doesn’t work properly, or if the lymphatics have been interrupted by trauma, surgery or invasive treatment (radiotherapy). The lymphatic system is a network of channels and nodes throughout the body that helps fight infection and remove excess fluid.”
What’s Lipoedema (and how do you spell this also?)
“Lipoedema is a long-term (chronic) condition where there’s an abnormal build-up of fat cells in the legs, thighs and buttocks, and sometimes in the arms. The condition usually only affects women, although in rare cases it can also affect men. It can be a progressive and very painful condition, and is often mistakenly diagnosed as obesity.”
Are treatments available on the NHS?
“Lymphoedema and Lipoedema are known to the NHS, and whilst there are Lymphoedema Clinics in towns and cities around the UK, few NHS facilities can offer MLD (manual lymphatic drainage) as part of the management of the conditions.”
Where can people find out more information about these conditions and available treatment?
A national directory of Independent Lymphoedema Therapists can be found via MLDUK http://www.mlduk.org.uk/therapists/
Is there any financial support available for people seeking treatment?
“There is no financial support for those people seeking help from an Independent Therapist, except in very special circumstances via their GP or hospital consultant.
Lymfund will support applications from MLDUK registered therapists to treat individuals who are unable to fund themselves.”
What is treatment like for these conditions?
“Lymfund will pay for 10 treatments per patient. Often the patient has received no care or treatment for their condition, and the 10 treatments given are enough to help teach the patient how to self-manage their condition, reduce the oedema, and often, more importantly, relieve the pain that many patients suffer with these conditions. The feedback from patients who have benefitted from funding via Lymfund, is incredibly positive. One comment that occurs most is ‘these treatments have made me feel so much better and able to cope’.”
Why should people give your daughter their hard earned cash?
“To enable people to receive beneficial hands on care that they cannot access via mainstream facilities.”
Any words of advice for your daughter on her adventure?
“Don’t look back – just keep swimming. No, wait, that was Dory………… oh well – I’ll say it too!!! Go Bean!”
What message would you have for people who think they may be suffering from these conditions but might be too worried to see their doctor:
“Talk to someone – contact anyone at the two organisations mentioned above – their helplines are manned by volunteer patients.”
So. Aside from raising awareness and (hopefully) some decent cash for a very deserving charity, why on EARTH am I doing The Lakesman?
Because of these two. My parents. They are such a massive inspiration to me. They support me and Lissie unconditionally and enthusiastically while simultaneously dealing with their own challenges both together and individually.
They have given me so much throughout my life, and they’ve always supported and encouraged me whatever I chose to do. So this one is going to be for them!
With it being so close to Christmas and the dreaded January blues, I’m going to hold off setting up a justgiving for now…. but in the new year I will start pestering you all with my charm in order to ply you for some of your hard earned cash on behalf of this truly deserving and brilliant cause.